Within the existing relationship you may have become a carer
Not only are you having to face the changes occurring to the individual with dementia but also your relationship may now involve being a carer. You may find that you need to take on additional responsibilities, including guiding, supporting and caring for the person with dementia.
It may be hard to consider the changes and be accepting of the additional responsibility. This may include financial responsibility when you are used to the person with dementia being completely independent.
If you have some idea of what to expect or what might happen, it gives you time to think about how you will deal with the changes.
To help you plan ahead, this section gives a general overview of what the future may hold for you as a friend or family caregiver. We also give information, advice and resource information to help you to support the person you care for and at the same time ensure that you are not forgotten on their journey.
Although it might not seem like it at times, you are never alone. There is a lot of support for you as a carer, from professionals, agencies, service providers, advice centres and carers’ organisations, some specialising in support for people with dementia. As a carer you also have carers’ rights that are protected in law.
A variety of support groups will exist in your local area. To find out who they are and how to contact them, it may be useful to contact some of the national organisations listed below.
www.ageuk.org.uk or call 0800 169 2081
www.alzheimers.org.uk or call 0845 300 0336
The Lewy Body Society
www.lewybody.org or call 0131 473 2385
www.carersuk.org or call 0808 808 7777
The Princess Royal Trust
www.carers.org or call 0844 800 4361
Concerns regarding financial or other abuse of a vulnerable person
If you have any concerns regarding financial or other abuse of a vulnerable person, you should contact the Office of the Public Guardian:
PO Box 16185
Tel: 0300 456 0300 or
Monday, Tuesday, Thursday and Friday - 9 am to 5pm
Wednesday - 10 am to 5 pm